People with a learning disability and autistic people often have poorer physical and mental health than other people and may face barriers to accessing health and care to keep them healthy. Too many people with a learning disability and autistic people are dying earlier than they should, many from things which could have been treated or prevented.
What is a LeDeR Review?
Integrated care systems (ICSs) of health and care providers complete LeDeR reviews looking at the health and social care received by people with a learning disability and autistic people who have died at age 18 and above, using a standardised review process. This enables the local system to identify good practice and what has worked well, as well as where improvements in the provision of care could be made. Local actions are taken to address the issues identified in reviews.
A LeDeR review is not a mortality review. It does not restrict itself to the last episode of care before the person’s death. Instead, it looks at key episodes of health and social care the person received that may have been relevant to their overall health outcomes. LeDeR reviews, however, do take account of any mortality review that may have taken place following a person’s death.
How to report to LeDeR?
Anyone can notify the LeDeR programme about someone who has died.
If you need help with this, please call 0300 561 1606 (Monday to Friday, 9am to 5pm) or 01278 727411 (Monday to Friday, 8.30am to 4.30pm) to talk to someone who can help you. Please note these numbers will not be available on bank holidays.
You can find out more about LeDeR on NHS England’s LeDeR website.
National LeDeR reports
National Report:
This annual report from the University of Bristol provides information about the deaths of people with a learning disability aged four years and over notified to the programme. There is also an easy read version available.
Resources
People First Merseyside https://peoplefirstmerseyside.co.uk/work/sefton
Sefton Directory shared a range of support in Sefton for adults with learning disabilities: Adults with Learning Disabilities | The Sefton Directory